Prostate Cancer Support Edmonton
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BC Cancer’s COMPASS study

I am a study coordinator for the University of British Columbia and BC Cancer’s COMPASS study, currently working for Dr. Bernard Lee, a Radiation Oncologist at BC Cancer Agency in Vancouver, Canada. We are a team of queer men and prostate cancer survivors developing a sexual quality-of-life questionnaire that will help improve prostate cancer treatment for other queer men. We are currently looking for survey-participants ages 40-75 to contribute to the last stage of our research! 
 
As the Prostate Edmonton Peer Support Society improves the quality of supports and resources for those facing prostate cancer, we love the thought of PEPSS being an avenue for recruiting patients to our study and helping us improve future patient care.

Here is the link to our survey, and privacy information (it’s also in our social media bios): https://redcap.link/Compass_Study
 
Here are the links to our Facebook and Twitter accounts (reposts/retweets always welcome):
 
Feel free to direct any questions to our study email pcastudy@hotmail.com.
 
Survey participants have a 1/5 chance of winning a $100 USD gift card.
 
Your contribution will make a big difference.
 
Thank you so much,
Carolina Martinez
BC Cancer

Virtual Conference Invite

Members

The BC Foundation has done a remarkable job in forming a National Council. Part of this national effort includes arranging the first ever virtual PC conference September 17/18. There is no cost to register. The BC team has arranged several great speakers to present and activities to keep attendees engaged online. I am on a road trip so it makes it impossible to attend myself. Please give thought to registering for the conference. Even attending for 1 day will be insightful.   Thanks Terry Kirkland 780 909-9960  

A 2-day online conference and expo taking place on September 17th and 18th.

The best part? It’s free and you can participate from anywhere you have an Internet connection.
Click here for registration page
Virtual Conference Invite

 

September Newsletter

September Newsletter
 
September is Prostate Cancer Awareness month. The National Council had requested the Provincial reps arrange to have buildings / structures lit in blue where available. We arranged to have the High Level Bridge lit in blue (Sept 1).   Shelley from the BC Foundation arranged to have The Legislative Assembly lit (Sept 1) and the Art Gallery lit Sept 25 in recognition of PC Awareness. 
 
We are not holding a meeting this month as we continue to search for an appropriate venue. We will hold a meeting Oct 11. Hopefully this can be our first meeting at Wellspring. I am waiting for confirmation from Dr Tamm to confirm as our speaker. Dr Tamm is conducting trials on PSMA PET Scans ( use of PET scan in conjunction with radio tracers – to locate small sites of disease not normally detected by scan alone). The more precise scans Improve treatment choice.
 
The BC Foundation is hosting a virtual Prostate Cancer conference September 17/18. 
Speaker line up and registration can be accessed at  2022 Prostate Cancer Virtual Conference
 
As much as I would like to experience my first Virtual Conference, I will not be able to attend the virtual conference as my wife and I are traveling in September.The BC Foundation has done a wonderful job of putting the conference together and I would encourage members to review the Conference agenda with the aim of attending.
 
Dan will also include a request below from the Canadian Cancer Network for volunteers to help them improve input from PC Patients and caregivers. I simply do not have time to step up for this opportunity. It would be good if an Edmonton member took on this role. 
 
Enjoy the wonderful month of September.
 
Terry  Kirkland
The PEPSS Executive

The Canadian Cancer Survivor Network is recruiting members for a Prostate Cancer Patient, Survivor, & Caregiver Advisory Committee. This Committee will help the Network create a new prostate cancer aggregator website over the next year, including the look and content of this website. Monthly Zoom meetings will be held.Please contact Jackie Manthorne, President & CEO of CCSN, at 613-898-1871 or jmanthorne@survivornet.ca.

Talk to a member that has received prostate cancer treatment

You may not want to ask questions at a group meeting. You may want to speak with someone having the same issues. You may want to talk with someone who has gone through the same treatment you are considering. Or after treatment, you may be dealing with complications.