Prostate Cancer Support Edmonton
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December Newsletter

Members

In keeping with the wishes expressed at the November 8th meeting, we will hold our monthly meeting at the “cafe” located at Westend Seniors Activity Centre (9629 – 176 St). Doors open at 6:30 meeting 7:00 PM.  Adjournment 9:00 PM.
 
We will provide light snacks and drinks at the meeting. We do not have a speaker scheduled for this meeting. The intention is to hold an open forum so members can share their PC experience or seek peer assistance with any treatment challenges they are facing.
 
As always, you are encouraged to bring along a friend or family member that may be facing a PC diagnosis. If you are aware of someone struggling with PC, let us know and we will try to help. 
 
If you have questions or suggestions before the meeting, call Terry.
 
Terry Kirkland
780 909-9960
 
National Council Activities:  www.prostatecancersupport.ca

Meeting Reminder

MembersA quick reminder of our monthly membership meeting will be held at the Westend  Seniors Activity Centre  Nov. 8th.  (9629 176 St). Doors open at 6:30. We could use a few members to set out about 40 chairs. 
It would be wonderful if we have a good attendance to honour Dr Tamm’s gracious offer to share his evening with us. Please invite any friend or family that you think might be interested.
Dr Tamm will present on  PSMA PET scans.  This is a new type of nuclear medicine used clinically to determine metastatic cancer in newly diagnosed PC patients and men that have been treated for their prostate cancer.
It would be great to see everyone one after a 2 year hiatus.  Tea, coffee, water and treats will be offered.
Thanks

Terry Kirkland

780 909-9960

November Newsletter

Members

November 8 we will host our second “in person” meeting this year. Hopefully this will be the start of our return to regular monthly meetings.
On November 8th, Dr, Alex Tamm has graciously offered to share his evening with the membership and present on PMSA PET Scans.  This is a new type of nuclear medicine used in 2 clinical scenarios: 1). in men with newly diagnosed  PC who are at risk for metastatic cancer and 2) men who have been treated for PC and now have suspected or recurrent disease. Many of us may require this diagnostic tool as we continue to live with PC.
The meeting will be held at the West Edmonton Seniors Centre ( 9629  176 ST) commencing at 7:00 PM. Easy access from 178 St via 98a Ave or 96 Ave) Canadian Tire is 2 blocks north on 178 St. Ideally if  members could arrive a few minutes early, we could use assistance to set out chairs, coffee, water. snacks. Besides, it would be good to see you all again. 
I am always grateful when one of our busy Edmonton  professionals shares their time and knowledge with the membership.  These exchanges are critical to advancing awareness and building teams. Please come out  and acknowledge Dr Tamm’s  selfless  offer to help us understand our PC journeys.
Of course we welcome you to bring along a guest that might find interest in the topic.
Terry Kirkland780 909-9960

October Newsleter

No meeting in October

Our 2 options for meeting, the Kaye Clinic and Wellspring, still have COVID restrictions in place. The Kaye Clinic is not allowing gatherings at their facility. Wellspring requires masking which we can work with. However they have COVID social distancing in place which reduces the capacity of the meeting room to 22 attendees. This puts us in an awkward position of potentially  turning members away if more than 22 members attend. Consequently we will not hold a general meeting in October.
 
Dr. Alex Tamm has tentatively agreed to present at our November meeting. We will proceed with this meeting if it means renting a venue elsewhere.
 
Sadly I learned today that Gary Firth passed away on Thursday Sept.29th with his family by his side. Members will remember Gary as a presenter at one of the meetings on his clinical trial.  Gary was also one of the originals on the True North Clinical exercise trial. A celebration of Life will be held at the Sturgeon Golf and Country Club Friday afternoon Oct 7.
 
Take time to explore our new website. www.pepss.ca. I think you will be impressed.

If you are aware of an acquaintance, friend or family member that is living with PC, encourage them to reach out and chat with a member that has received treatment. A trouble shared is a trouble halved.
Terry Kirkland
780 909-9960

BC Cancer’s COMPASS study

I am a study coordinator for the University of British Columbia and BC Cancer’s COMPASS study, currently working for Dr. Bernard Lee, a Radiation Oncologist at BC Cancer Agency in Vancouver, Canada. We are a team of queer men and prostate cancer survivors developing a sexual quality-of-life questionnaire that will help improve prostate cancer treatment for other queer men. We are currently looking for survey-participants ages 40-75 to contribute to the last stage of our research! 
 
As the Prostate Edmonton Peer Support Society improves the quality of supports and resources for those facing prostate cancer, we love the thought of PEPSS being an avenue for recruiting patients to our study and helping us improve future patient care.

Here is the link to our survey, and privacy information (it’s also in our social media bios): https://redcap.link/Compass_Study
 
Here are the links to our Facebook and Twitter accounts (reposts/retweets always welcome):
 
Feel free to direct any questions to our study email pcastudy@hotmail.com.
 
Survey participants have a 1/5 chance of winning a $100 USD gift card.
 
Your contribution will make a big difference.
 
Thank you so much,
Carolina Martinez
BC Cancer

September Newsletter

September Newsletter
 
September is Prostate Cancer Awareness month. The National Council had requested the Provincial reps arrange to have buildings / structures lit in blue where available. We arranged to have the High Level Bridge lit in blue (Sept 1).   Shelley from the BC Foundation arranged to have The Legislative Assembly lit (Sept 1) and the Art Gallery lit Sept 25 in recognition of PC Awareness. 
 
We are not holding a meeting this month as we continue to search for an appropriate venue. We will hold a meeting Oct 11. Hopefully this can be our first meeting at Wellspring. I am waiting for confirmation from Dr Tamm to confirm as our speaker. Dr Tamm is conducting trials on PSMA PET Scans ( use of PET scan in conjunction with radio tracers – to locate small sites of disease not normally detected by scan alone). The more precise scans Improve treatment choice.
 
The BC Foundation is hosting a virtual Prostate Cancer conference September 17/18. 
Speaker line up and registration can be accessed at  2022 Prostate Cancer Virtual Conference
 
As much as I would like to experience my first Virtual Conference, I will not be able to attend the virtual conference as my wife and I are traveling in September.The BC Foundation has done a wonderful job of putting the conference together and I would encourage members to review the Conference agenda with the aim of attending.
 
Dan will also include a request below from the Canadian Cancer Network for volunteers to help them improve input from PC Patients and caregivers. I simply do not have time to step up for this opportunity. It would be good if an Edmonton member took on this role. 
 
Enjoy the wonderful month of September.
 
Terry  Kirkland
The PEPSS Executive

The Canadian Cancer Survivor Network is recruiting members for a Prostate Cancer Patient, Survivor, & Caregiver Advisory Committee. This Committee will help the Network create a new prostate cancer aggregator website over the next year, including the look and content of this website. Monthly Zoom meetings will be held.Please contact Jackie Manthorne, President & CEO of CCSN, at 613-898-1871 or jmanthorne@survivornet.ca.

Talk to a member that has received prostate cancer treatment

You may not want to ask questions at a group meeting. You may want to speak with someone having the same issues. You may want to talk with someone who has gone through the same treatment you are considering. Or after treatment, you may be dealing with complications.